COA Instruments Distributed by Mapi Research Trust

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PAGI-QOLPatient Assessment of Upper Gastrointestinal Disorders-Quality of Life

Janssen Global Services, LLC (USA), Mapi

Therapeutic area: Pathological Conditions, Signs and Symptoms, Digestive System Diseases

To measure QoL and symptoms specific to all three Upper GastroIntestinal Disorders populations.

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PAGI-SYMPatient Assessment of Gastrointestinal Disorders Symptom Severity Index

Janssen Global Services, LLC (USA)

Therapeutic area: Pathological Conditions, Signs and Symptoms, Digestive System Diseases

To measure symptom severity in patients with upper Gastrointestinal disorders: GERD, dyspepsia, and gastroparesis

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PAH-SYMPACTPulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT) Questionnaire

McCollister D, Shaffer S, Badesch DB et al.

Therapeutic area: Respiratory Tract Diseases

To assess pulmonary arterial hypertension symptoms and their impact

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PAR-ENT-QoLParents Questionnaire: The effects of Rhinopharyngitis and/or otitis of the child upon family life

Mapi, Pierre Fabre Medicament

Therapeutic area: Stomatognathic Diseases, Otorhinolaryngologic Diseases, Respiratory Tract Diseases

To measure the cumulative effect of recurrence of children’s ENT (Ear, Nose and Throat) infections on their parent’s quality of life

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Patient EOCPatient Ease-Of-Care Questionnaire

Janssen Global Services, LLC (USA)

Therapeutic area: Pathological Conditions, Signs and Symptoms, Anesthesia and Analgesia

To assess the ease of use that patients associate with patient-controlled analgesia (PCA) modalities

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PCSPain Catastrophizing Scale

Sullivan MJ

Therapeutic area: Generic

To assess the state of mind of patients in pain through a comprehensive evaluation instrument that encompasses the different perspectives on catastrophizing.

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PDQPerceived Deficits Questionnaire

Sullivan MJ, Edgley K, DeHousx E

Therapeutic area: Nervous System Diseases, Immune System Diseases

To measure the degree to which individuals with MS perceive themselves as experiencing cognitive difficulties

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PDQ-DPerceived Deficits Questionnaire – Depression

Fehnel SE, Forsyth BH, DiBenedetti DB et al.

Therapeutic area: Behavior and Behavior Mechanisms

To assess cognitive dysfunction in Major Depressive Disorder (MDD)

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PDQLParkinson's Disease Quality of Life Questionnaire

De Boer A

Therapeutic area: Nervous System Diseases

To assess quality of life in patients with Parkinson’s disease

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PDSS-2Parkinson’s Disease Sleep Scale 2

Chaudhuri K R, Trenkwalder Claudia

Therapeutic area: Nervous System Diseases

To characterise and quantify the various aspects of nocturnal sleep problems in Parkinson's disease (PD)

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PedsQL™Pediatric Quality of Life Inventory™

Varni James W


To assess health-related quality of life in children in various diseases areas. Applicable for healthy school and community populations, as well as pediatric populations with acute and chronic health conditions

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PEESS v2.0Pediatric Eosinophilic Esophagitis Symptom Severity Module, version 2.0

Franciosi JP

Therapeutic area: Digestive System Diseases, Hemic and Lymphatic Diseases, Immune System Diseases

To improve the accuracy of symptom severity scoring for patients with Eosinophilic Esophagitis and their parents/guardians

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PGA of the method of pain controlPatient Global Assessment of the method of pain control

Janssen Global Services, LLC (USA)

Therapeutic area: Pathological Conditions, Signs and Symptoms, Anesthesia and Analgesia

To capture patient perceptions of treatment that may not be captured by measuring pain intensity alone

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PGICPatient Global Impression of Change

National Institute of Mental Health (NIMH)

Therapeutic area: Generic

This scale evaluates all aspects of patients' health and assesses if there has been an improvement or decline in clinical status

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PGWBIPsychological General Well-Being Index

Dupuy HJ

Therapeutic area: Generic

To measure self-representations of intrapersonal affective or emotional states reflecting a sense of subjective well-being or distress

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PI-EDPaediatric Index of Emotional Distress

GL Assessment Ltd

Therapeutic area: Generic

To measure emotional distress in children and young people in primary care / hospital, social work or school settings

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PKU-QOLPhenylketonuria impact and treatment Quality Of Life Questionnaire

Mapi

Therapeutic area: Nervous System Diseases, Nutritional and Metabolic Diseases, Congenital, Hereditary, and Neonatal Diseases and Abnormalities

Developed for patients with phenylketonuria (PKU) and their parents to cover the physical, emotional, and social impacts of PKU and its treatment on patients’ lives

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PPPASIPalmoplantar Pustulosis Area and Severity Index

Bhushan M, Burden AD, James R et al.

Therapeutic area: Skin and Connective Tissue Diseases

To address erythema, total number of pustules and desquamation.

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PPSCPlay Performance Scale for Children

Lansky LL, Ritter-Stern C, Miller DR et al.

Therapeutic area: Neoplasms

To assess the quality and type of usual child's play activity/ the performance of status of children.

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PQAS and PQAS-RPain Quality Assessment Scale and Revised Pain Quality Assessment Scale

Galer BS, Gammaitoni AR, Jensen MP

Therapeutic area: Nervous System Diseases, Pathological Conditions, Signs and Symptoms, Psychological Phenomena and Processes, Musculoskeletal and Neural Physiological Phenomena

To assess distinct pain qualities associated with all types and categories of pain problems, including both nociceptive and neuropathic pain