Alzheimer's Disease-Related Quality of Life (ADRQL)

Black BS; Kasper JD; Rabins PV

Distributed by Mapi Research Trust


Distributed by Mapi Research Trust

Basic description

Developed in 1999

Revised in 2009 (40-item version recommended by the author)


Black BS; Kasper JD; Rabins PV

ADRQL© 1997, 2009 by Peter V. Rabins, M.D. Judith D. Kasper, Ph.D. and Betty S. Black, Ph.D
To evaluate treatment interventions in Alzheimer's Disease
Therapeutic area
  • Nervous System Diseases
  • Mental Disorders
Therapeutic indication

Alzheimer Disease

Type of Clinical Outcome Assessment (COA)
  • obsro ObsRO
Original language(s)
  • English for the USA
Bibliographic reference(s) of the original questionnaire

Original version:

Rabins Peter V, Kasper Judith D, Kleinman l et al. Concepts and methods in the development of the ADRQL : an instrument for assessing health-related quality of life in persons with Alzheimer’s disease. Journal of Mental Health and Aging, 1999;5,1: 33-48 (abstract)

Black BS, Rabins PV, & Kasper JD. Alzheimer Disease Related Quality of Life User’s Manual. Baltimore, Maryland: DEMeasure. 2000

Rabins PV. Measuring quality of life in persons with dementia. Int Psychogeriatr. 2000;12(suppl.1):47-9 (abstract)

Revised version:

Kasper JD, Black BS, Shore AD, Rabins PV. Evaluation of the validity and reliability of the Alzheimer Disease-related Quality of Life Assessment Instrument. Alzheimer Dis Assoc Disord. 2009 Jul-Sep;23(3):275-84 (Full text article)

Access this questionnaire

Please proceed below

Login SIGN up free

Contact and conditions of use


Black BS; Kasper JD; Rabins PV

- Peter V Rabins, MD, MPH
John Hopkins University
School of Medicine
Dept of Psychiatry
Professor, Psychiatry and Behavioral Sciences
East Baltimore Campus
600 N. Wolfe Street
Baltimore, MD 21287-7279
Phone: +1 (410) 955-6736
Fax: +1 (410) 614-1094
E-mail: pvrabins@jhmi.edu

Peter V Rabins Publications (PubMed)

Contact information

Mapi Research Trust
27 rue de la Villette
69003 Lyon
Phone: +33 (0)4 72 13 66 66

Conditions of use

Non-Commercial Users

You may access available translations of the questionnaire directly (see tutorial). Should you not see the Download button, please contact us.

Commercial Users

All requests have to be submitted through our online request management:

  1. Log in or Register for free
  2. Submit your request (Tutorials are available on our FAQs)
  3. In order to accelerate the process, you may attach the User Agreement (even if not finalized) to your online request. 
  4. Our PROVIDE team will get back to you with the needed information in a timely manner

Review copy

Examination copies can only be used for the limited purpose of examining the suitability of the Questionnaire for subsequent research and/or clinical use, and cannot be used in research or in clinical practice or distributed to others.
You are not authorized to modify, retype, translate, copy or otherwise duplicate the Questionnaire except with the further and prior written permission of Mapi Research Trust / the developers / copyright holders / distributors.


Original language(s)

  • English for the USA


The listed translations may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study. This list is subject to constant changes, therefore please check the status of translations with Mapi Research Trust / the developers / copyright holders / distributors.


Danish for Denmark
French for France
German for Germany
Japanese for Japan
Spanish for Spain

ADRQL revised

Czech for Czech Republic*
Romanian for Romania*
Russian for Ukraine*
Slovak for Slovakia*
Spanish for the USA*
Ukrainian for Ukraine*
* Performed by Mapi

The author has selected Mapi/ICON Language Services as exclusive linguistic validation company to ensure the production of harmonized and consistent language versions.

For additional information on available translations of this instrument, or for a project involving new languages, please submit a request (tutorials available on our FAQs).

Conditions to translate

Academic Translation

If you wish to translate the questionnaire:

  1. Log in or Register for free
  2. Submit your request for translation online (Tutorials are available on our FAQs)
  3. Our PROVIDE team will send you a translation agreement along with Linguistic Validation Guidelines.

Commercial Users

Exclusive vendor for translation work for commercial users: Mapi/ICON Language Services

Member Access

Subscribe to PROQOLID to access to full information

Access to advanced descriptions of Clinical Outcome Assessments (COAs)

A question? Contact us