loading...
Distributed by Mapi Research Trust
Distributed by Mapi Research Trust
Developed in 2013
Otsuka Pharmaceutical Development & Commercialization, Inc (USA)
Polycystic Kidney, Autosomal Dominant
Cole J, Cheng R, Oberdhan D, Krasa H, Hays RD. Psychometric analyses of patient-reported outcome instruments for Autosomal Dominant Polycystic Kidney Disease. Value in Health. 2015 May;16(3):A183 (Poster Abstract)
Oberdhan D, Krasa H, Schaefer C, Cole J. Health-Related Quality Of Life (HRQoL) Measures In Autosomal Dominant Polycystic Kidney Disease (ADPKD). Value in Health. 2015;18(7). (Abstract)
Oberdhan D, Cole JC, Krasa HB, Cheng R, Czerwiec FS, Hays RD, Chapman AB, Perrone RD. Development of the Autosomal Dominant Polycystic Kidney Disease Impact Scale: A New Health-Related Quality-of-Life Instrument. Am J Kidney Dis. 2017 Nov 14. pii: S0272-6386(17)30951-4. (Full Text Article)
Otsuka Pharmaceutical Development & Commercialization, Inc (USA)
Otsuka Pharmaceutical Development & Commercialization, Inc.
2440 Research Boulevard
Rockville, MD 20850
USA
Phone: +1-240-683-3517 |
Fax: +1-301-721-7517 |
Contact person:
Dorothee Oberdhan, MS
Senior Manager, HEOR and Outcomes Management
E-mail: dorothee.oberdhan@otsuka-us.com
Mapi Research Trust
PROVIDE™
27 rue de la Villette
69003 Lyon
France
Phone: +33 (0)4 72 13 66 66
If you do not receive specific funding for your study, you may download the questionnaire directly:
Tutorials are available on our FAQs.
All requests have to be submitted through our online request management:
ROYALTY FEES* | Commercial users | Cost per study | 10 000 € |
Cost per language | 550 € | ||
Funded academic research | Cost per study | Free | |
Cost per language | Free | ||
Not funded academic users | Cost per study | Free | |
Cost per language | Free |
DISTRIBUTION FEES* | Commercial users | Cost per study | 1 000 € |
Cost per language | 500 € | ||
Funded academic research | Cost per study | 300 € | |
Cost per language | 50 € | ||
Not funded academic users | Cost per study | Free | |
Cost per language | Free |
* Excluding VAT
Commercial users: Industry, CRO, any for-profit companies
Funded Academic research: Projects receiving funding from commerce, government, EU or registered charity. Funded academic research– sponsored by industry fits the “commercial users” category.
Not funded academic users, individual medical practice: Projects are not explicitly funded, but funding comes from overall departmental funds or from the University or individual funds
Please refer to the "Languages" tab
Exclusive licensor for e-versions of the questionnaire: Mapi Research Trust
Examination copies can only be used for the limited purpose of examining the suitability of the Questionnaire for subsequent research and/or clinical use, and cannot be used in research or in clinical practice or distributed to others.
You are not authorized to modify, retype, translate, copy or otherwise duplicate the Questionnaire except with the further and prior written permission of Mapi Research Trust / the developers / copyright holders / distributors.
The listed translations may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study. This list is subject to constant changes, therefore please check the status of translations with Mapi Research Trust / the developers / copyright holders / distributors.
The author has selected Mapi as exclusive linguistic validation company to ensure the production of harmonized and consistent language versions.
For additional information on available translations of this instrument, or for a project involving new languages, please submit a request (tutorials available on our FAQs).
If you wish to translate the questionnaire:
If your study is funded, or if you haven't found your translation in the Languages menu, please submit your request online.
Our team will get back to you as soon as possible.
And get access to advanced descriptions of Clinical Outcome Assessments (COAs)!
A question? Contact us