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Autosomal Dominant Polycystic Kidney Disease Impact Scale (ADPKD-IS)

Otsuka Pharmaceutical Development & Commercialization, Inc (USA)

Distributed by Mapi Research Trust

ProQolid

Distributed by Mapi Research Trust

Basic description

Developed in 2013

Authors

Otsuka Pharmaceutical Development & Commercialization, Inc (USA)

Copyright
ADPKD-IS © Otsuka Pharmaceutical Development & Commercialization, Inc. 2013, All Rights Reserved.
Objective
To measure the impact of ADPKD on patients’ lives
Therapeutic area
  • Female Urogenital Diseases and Pregnancy Complications
  • Male Urogenital Diseases
  • Rare disease (Orphanet definition)
Therapeutic indication

Polycystic Kidney, Autosomal Dominant For more information on this rare disease, please consult the following link: Orphanet page

Type of Clinical Outcome Assessment (COA)
  • pro PRO
Original language(s)
  • English for the USA
Bibliographic reference(s) of the original questionnaire

Cole J, Cheng R, Oberdhan D, Krasa H, Hays RD. Psychometric analyses of patient-reported outcome instruments for Autosomal Dominant Polycystic Kidney Disease. Value in Health. 2015 May;16(3):A183 (Poster Abstract)

Oberdhan D, Krasa H, Schaefer C, Cole J. Health-Related Quality Of Life (HRQoL) Measures In Autosomal Dominant Polycystic Kidney Disease (ADPKD). Value in Health. 2015;18(7). (Abstract)

Oberdhan D, Cole JC, Krasa HB, Cheng R, Czerwiec FS, Hays RD, Chapman AB, Perrone RD. Development of the Autosomal Dominant Polycystic Kidney Disease Impact Scale: A New Health-Related Quality-of-Life Instrument. Am J Kidney Dis. 2017 Nov 14. pii: S0272-6386(17)30951-4. (Full Text Article)

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Contact and conditions of use

Authors

Otsuka Pharmaceutical Development & Commercialization, Inc (USA)

Otsuka Pharmaceutical Development & Commercialization, Inc.
2440 Research Boulevard
Rockville, MD 20850
USA
Phone: +1-240-683-3517 |
Fax: +1-301-721-7517 |

Contact person:
Dorothee Oberdhan, MS
Senior Manager, HEOR and Outcomes Management
E-mail: dorothee.oberdhan@otsuka-us.com

Contact information

Mapi Research Trust
PROVIDE™
27 rue de la Villette
69003 Lyon
France
Phone: +33 (0)4 72 13 66 66

Conditions of use

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Languages

Original language(s)

  • English for the USA

Translations

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ADPKD-IS

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Polish for Poland
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Spanish for Spain
Spanish for the USA
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