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Celiac Disease Quality of Life Measure (CD-QOL)

Drossman DA; Dorn S

Distributed by Mapi Research Trust

Distributed by Mapi Research Trust

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Basic description

Developed in 2009

Authors

Drossman DA; Dorn S

Copyright
Copyright 2014, Rome Foundation
Objective
To evaluate coeliac disease related QOL of patients with this disorder
Therapeutic area
  • Digestive System Diseases
  • Nutritional and Metabolic Diseases
Therapeutic indication

Celiac Disease

Type of Clinical Outcome Assessment (COA)
  • PRO PRO
Original language(s)
  • English for the USA
Bibliographic reference(s) of the original questionnaire

Dorn SD, Hernandez L, Minaya MT, Morris CB, Hu Y, Leserman J, Lewis S, Lee A, Bangdiwala SI, Green PH, Drossman DA. The development and validation of a new coeliac disease quality of life survey (CD-QOL). Aliment Pharmacol Ther. 2010 Mar;31(6):666-75 (Pubmed abstract)


Contact and conditions of use

Contact information

Mapi Research Trust
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69003 Lyon
France
Phone: +33 (0)4 72 13 66 66

Conditions of use

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Access fees

ROYALTY FEES* Commercial users Cost per study 1050 €
Cost per language 525 € per language version (existing or being developed)
Funded academic research Cost per study Free
Cost per language Free
Not funded academic users Cost per study Free
Cost per language Free
DISTRIBUTION FEES* Commercial users Cost per study 1 000 €
Cost per language 500 €
Funded academic research Cost per study 300 €
Cost per language 50 €
Not funded academic users Cost per study Free
Cost per language Free

* Excluding VAT
Commercial users: Industry, CRO, any for-profit companies
Funded Academic research: Projects receiving funding from commerce, government, EU or registered charity. Funded academic research– sponsored by industry fits the “commercial users” category.
Not funded academic users, individual medical practice: Projects are not explicitly funded, but funding comes from overall departmental funds or from the University or individual funds

Review copy

Examination copies can only be used for the limited purpose of examining the suitability of the Questionnaire for subsequent research and/or clinical use, and cannot be used in research or in clinical practice or distributed to others.
You are not authorized to modify, retype, translate, copy or otherwise duplicate the Questionnaire except with the further and prior written permission of Mapi Research Trust / the developers / copyright holders / distributors.

Languages

Original language(s)

  • English for the USA

Translations

The translations listed may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study. This list is subject to constant changes, therefore please check the status of translations with Mapi Research Trust / the developers / copyright holders / distributors.

CD-QOL

Czech for Czech Republic
Dutch for the Netherlands
Italian for Italy
Portuguese for Brazil
Spanish for Spain

Conditions to translate

USER shall not translate the Questionnaire, without the prior written agreement of the OWNER.

Specific translation processes are required by the OWNER for the development of any new translations and must be followed. Mapi Research Trust will provide guidance on the process.

Please contact Mapi

More information on translations

For information on, or permission to use the translations, please contact:

 Mapi Research Trust

Bibliographic reference of the Spanish translation:

Casellas F, Rodrigo L, Molina-Infante J, Vivas S, Lucendo AJ, Rosinach M, Dueñas C, Fernández-Bañares F, López-Vivancos J. Transcultural adaptation and validation of the Celiac Disease Quality of Life (CD-QOL) Survey, a specific questionnaire to measure quality of life in patients with celiac disease. Rev Esp Enferm Dig. 2013 Nov-Dec;105(10):585-93 (Full text article)

Last update: October 2017
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