Chronic Generic Module - Long version - Self-reported version (DISABKIDS DCGM-37 - SR version)

Bullinger M


Basic description

  • Published in 2006
  • This instrument can be used in tandem with the KIDSCREEN to compare DISABKIDS data with epidemiological reference data
  • A proxy-rated version is also available
  • 12-item short-forms (DCGM-12), 6-item Smiley versions (for children aged 4-7 years) and 7 condition-specific modules (asthma, arthritis, cerebral palsy, cystic fibrosis, dermatitis, diabetes, and epilepsy) exist

Bullinger M

DISABKIDS © • Chronic Generic Module • Young people 8-18
To assess the Health Related Quality of Life (HRQoL) of children and adolescents with chronic medical conditions from their own as their parents’ or caregivers’ perspectives
Therapeutic area
  • Pathological Conditions, Signs and Symptoms
Therapeutic indication

Chronic Disease

Type of Clinical Outcome Assessment (COA)
  • pro PRO
Original language(s)
  • Dutch for the Netherlands
  • English for the UK
  • French for France
  • German for Germany
  • Swedish for Sweden
Bibliographic reference(s) of the original questionnaire

Simeoni MC, Schmidt S, Muehlan H. Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic Module. Qual Life Res. 2007 Jun;16(5):881-93 (Pubmed Abstract)

Ravens-Sieberer U, Schmidt S, Gosch A, Erhart M, Petersen C, Bullinger M. Measuring subjective health in children and adolescents: results of the European KIDSCREEN/DISABKIDS Project. Psychosoc Med. 2007 Jul 12;4:Doc08 (Full Text Article)

Schmidt S, Debensason D, Mühlan H. The DISABKIDS generic quality of life instrument showed cross-cultural validity. J Clin Epidemiol. 2006 Jun;59(6):587-98 (Pubmed Abstract)

The DISABKIDS Group Europe. (2006). The DISABKIDS questionnaires: Quality of life questionnaires for children with chronic conditions - Handbook. Lengerich: Pabst Science Publishers.

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