Cystic Fibrosis Questionnaire-Revised (CFQ-R)

Quittner AL


Basic description

  • The original CFQ was developed in France in 1997. It was revised by Dr Quittner et al. in 2000.
  • The CFQ-R comprises 4 versions:
    • Teen/Adult version
    • Child version (interviewer format and self-report format)
    • Parent version for children
    • Preschool version

Quittner AL

Copyright Quittner, Buu, Watrous and Davis, 2000
Quality of life assessment of children, adolescents, and adults with cystic fibrosis
Therapeutic area
  • Digestive System Diseases
  • Respiratory Tract Diseases
  • Congenital, Hereditary, and Neonatal Diseases and Abnormalities
  • Rare disease (Orphanet definition)
Therapeutic indication

Cystic Fibrosis For more information on this rare disease, please consult the following link: Orphanet page

Type of Clinical Outcome Assessment (COA)
  • obsro ObsRO
  • pro PRO
ObsRO: ages 6-13 years; PRO: ages 11 and older
Original language(s)
  • English for the USA
33 translation(s)
Bibliographic reference(s) of the original questionnaire

Quittner AL, Buu A, Messer MA, Modi AC, Watrous M. Development and validation of The Cystic Fibrosis Questionnaire in the United States: a health-related quality-of-life measure for cystic fibrosis. Chest. 2005 Oct;128(4):2347-54 (PubMed Abstract)

Modi AC, Quittner AL. Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis. J Pediatr Psychol. 2003 Dec;28(8):535-45 (PubMed Abstract)

Quittner AL, Sweeny S, Watrous M, Munzenberger P, Bearss K, Gibson Nitza A, Fisher LA, Henry B. Translation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis. J Pediatr Psychol. 2000 Sep;25(6):403-14 (PubMed Abstract)

Quittner AL, Espelage DL, Watrous ML, and al. Validation of a disease-specific quality of life measure for cystic fibrosis: The cystic fibrosis questionnaire (CFQ). Pediat Pulmonol 1999; Suppl 19): 326

Quittner AL. Measurement of quality of life in cystic fibrosis. Curr Opin Pulm Med. 1998 Nov;4(6):326-31 (PubMed abstract)

Quittner AL, Sawicki GS, McMullen A, Rasouliyan L, Pasta DJ, Yegin A, et al. Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample.[Republished in Qual Life Res. 2012 Sep;21(7):1279-90 (PubMed abstract)

Quittner AL, Morris AM, Wainwright C, Cheney J. Development of the preschool cystic fibrosis questionnaire-revised (CFQ-R). Quality of Life Research. 2015;24 (1 Supplement 1):41. (conference abstract)

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