Haemophilia Quality of Life Questionnaire for Adults (Haem-A-QoL)

Haem-A-QoL Group


Basic description

Developed in 2005


Haem-A-QoL Group

© Haem-A-QoL Group. All rights reserved.
To assess health-related quality of life in adult patients with haemophilia
Therapeutic area
  • Hemic and Lymphatic Diseases
  • Congenital, Hereditary, and Neonatal Diseases and Abnormalities
  • Rare disease (Orphanet definition)
Therapeutic indication
  • Hemophilia A For more information on this rare disease, please consult the following link: Orphanet page
  • Hemophilia B
Type of Clinical Outcome Assessment (COA)
  • pro PRO
Original language(s)
  • English for the UK
  • Italian for Italy
56 translation(s)
Bibliographic reference(s) of the original questionnaire

von Mackensen S, Scalone L, Ravera S, et al. Assessment of health-related quality of life in patients with haemophilia with the newly developed haemophilia-specific instrument Haem-A-QoL. Value in Health. 2005;8(6):A127. (Conference Abstract)

von Mackensen S, Gringeri A & the Haem-A-QoL study Group. Health-related Quality of Life in Adult Patients with Haemophilia – Assessment with a New Disease-specific Questionnaire (Haem-A-QoL). Journal Of Thrombosis and Haemostasis. 2005;3(Sup1):P0813.

von Mackensen S, Gringeri A. Quality of Life in Hemophilia. In: Handbook of Disease Burdens and Quality of Life Measures. Heidelberg: Springer; 2009;pp.1910-1.

Bullinger M, Globe D, Wasserman J, et al. Challenges of patient-reported outcome assessment in hemophilia care - a state of the art review. Value in Health. 2009 Jul-Aug;12(5):808-20 (PubMed Abstract

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