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Haemophilia Quality of Life Questionnaire for Children (Haemo-QOL)

Haemo-QoL Group

ProQolid

Basic description

Developed in 2002

A Haemo-QoL-Index (an 8-item index version spanning all age groups) is also available as a self- and parent-report (Pollak et al., 2006)

Authors

Haemo-QoL Group

Copyright
© Haemo-QoL Study Centre at the University of Hamburg, Germany and Bayer Biological Products, Research Triangle Park, North Carolina, USA
Objective
To assess quality of life in children/adolescents with haemophilia and their parents
Therapeutic area
  • Hemic and Lymphatic Diseases
  • Congenital, Hereditary, and Neonatal Diseases and Abnormalities
  • Rare disease (Orphanet definition)
Therapeutic indication
  • Hemophilia A For more information on this rare disease, please consult the following link: Orphanet page
  • Hemophilia B
Type of Clinical Outcome Assessment (COA)
  • obsro ObsRO
  • pro PRO
Original language(s)
  • Dutch for the Netherlands
  • English for the UK
  • French for France
  • German for Germany
  • Italian for Italy
  • Spanish for Spain
Translations
49 translation(s)
Bibliographic reference(s) of the original questionnaire

Bullinger M, von Mackensen S, Fischer K, Khair K, Petersen C, Ravens-Sieberer U, Rocino A, Sagnier P, Tusell JM, van den Berg M, Vicariot M. Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries. Haemophilia. 2002 Mar;8 Suppl 2:47-54 (Full Text Article)

von Mackensen S, Bullinger M; Haemo-QoL Group. Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL). Haemophilia. 2004;10(1):17-25 (PubMed Abstract)

Pollak E, Mühlan H, VON Mackensen S, Bullinger M; HAEMO-QOL GROUP. The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia. Haemophilia. 2006 Jul;12(4):384-92 (Full Text Article)

Bradley CS, Bullinger M, McCusker PJ, Wakefield CD, Blanchette VS, Young NL. Comparing two measures of quality of life for children with haemophilia: the CHO-KLAT and the Haemo-QoL. Haemophilia. 2006 Nov;12(6):643-53 (PubMed Abstract)

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