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Hemophila-specific Quality of Life Questionnaire for Adults (Haemo-QoL-A)

Rentz AM; Flood E; Altisent C; Klamroth R; Garrido RP; Scharrer I; Schramm W; Gorina E; Bullinger M

ProQolid

Basic description

Published in 2008

The haemophilia-specific quality of life questionnaire for adults (HAEMO-QoL-A) was constructed to be paired with a haemophilia-specific paediatric instrument, the Haemo-QoL (von Mackensen S et al. 2004) developed for children.

Authors

Rentz AM; Flood E; Altisent C; Klamroth R; Garrido RP; Scharrer I; Schramm W; Gorina E; Bullinger M

Members of the Haemo-QoL-A Steering Committee
Copyright
Haemo-QoL-A © 2003 MEDTAP® International and Bayer Biological Products. All rights reserved. Do not duplicate or distribute without permission.
Objective
To measure Heath-Related Quality of Life (QOL) in adults with Haemophilia via a specific patient-reported instrument
Therapeutic area
  • Hemic and Lymphatic Diseases
  • Congenital, Hereditary, and Neonatal Diseases and Abnormalities
  • Rare disease (Orphanet definition)
Therapeutic indication
  • Hemophilia A For more information on this rare disease, please consult the following link: Orphanet page
  • Hemophilia B
Type of Clinical Outcome Assessment (COA)
  • pro PRO
Original language(s)
  • English for the USA
Translations
32 translation(s)
Bibliographic reference(s) of the original questionnaire

Rentz A, Flood E, Altisent C, Bullinger M, Klamroth R, Garrido RP, Scharrer I, Schramm W, Gorina E. Members of the HAEMO-QoL-A Steering Committee. Cross-cultural development and psychometric evaluation of a patient-reported health-related quality of life questionnaire for adults with haemophilia. Haemophilia. 2008 Sep;14(5):1023-34 (PubMed abstract)

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