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Hemophilia-specific health-related quality of life questionnaire (A36 Hemofilia-QoL®)

Arranz Pilar; Remor Eduardo

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Basic description

Authors

Arranz Pilar; Remor Eduardo

Copyright
© 2005 P. Arranz & E. Remor
Objective
To assess quality of life in adults living with hemophilia
Therapeutic area
  • Hemic and Lymphatic Diseases
  • Congenital, Hereditary, and Neonatal Diseases and Abnormalities
Therapeutic indication

Hemophilia A and B

Congenital coagulopathy (Hemophilia A or B)
Type of Clinical Outcome Assessment (COA)
  • PRO PRO
Original language(s)
  • Spanish for Spain
Translations
9 translation(s)
Bibliographic reference(s) of the original questionnaire

Remor E, Arranz P, Quintana M, Villar A, Jiménez-Yuste V, Diaz JL, Rincón C, Marrero C, Moreno M, Lucia JF, Martínez E, Soto I, Sedano C, Gonzalez-Boullosa R, Prieto M, Garcia-Luaces M, Hernández-Navarro F; Hemofilia-QoL Project Group. Psychometric field study of the new haemophilia quality of life questionnaire for adults: the 'Hemofilia-QoL'. Haemophilia. 2005 Nov;11(6):603-10 (PubMed abstract)

Arranz P, Remor E, Quintana M, Villar A, Díaz JL, Moreno M, Monteagudo J, Ugarriza A, Soto I, Pérez R, Chacón J, García-Luaces M, Cid A, Balda I, López MF, Gutíerrez MJ, Martínez E, Marrero C, Prieto M, Sedano C, Vaca R, Altisent C, Hernández-Navarro F; Hemofilia-QoL Group. Development of a new disease-specific quality-of-life questionnaire to adults living with haemophilia. Haemophilia. 2004 Jul;10(4):376-82 (PubMed abstract)

Last update: January 2016
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