Individualized Neuromuscular Quality of Life Questionnaire (INQoL)

Carr AJ; Rose MR; Vincent KA

Distributed by Mapi Research Trust


Distributed by Mapi Research Trust

Basic description

Developed in 2005

The author recommends the use of the version 2.0.


Carr AJ; Rose MR; Vincent KA

INQoL © 2005 M R Rose & King’s College NHS-Trust, All rights reserved.
To assess health-related quality of life of patient suffering from neuromuscular diseases.
Therapeutic area
  • Nervous System Diseases
  • Musculoskeletal Diseases
  • Immune System Diseases
  • Rare disease (Orphanet definition)
Therapeutic indication
  • Muscular Diseases
  • Myasthenia Gravis For more information on this rare disease, please consult the following link: Orphanet page
Adult muscle diseases both acquired or congenital including congenital myopathies, limb girdle muscular dystrophies, facioscapulohumeral muscular dystrophy, dystrophic and non-dystrophic myotonias and inflammatory myopathies
Type of Clinical Outcome Assessment (COA)
  • pro PRO
Original language(s)
  • English for the UK
Bibliographic reference(s) of the original questionnaire

Vincent KA, Carr AJ, Walburn J, Scott DL, Rose MR. Construction and validation of a quality of life questionnaire for neuromuscular disease (INQoL). Neurology. 2007 Mar 27;68(13):1051-7 (PubMed Abstract)

Rose M, Brooks V, Walburn J, Sanders D, Pandya S, Kissel J et al. Validation of a quality of life measure for myasthenia gravis. Neuromuscular Disorders 2006; 16 supplement: S152

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Contact and conditions of use


Carr AJ; Rose MR; Vincent KA

Dr Michael Rose
Consultant and Honorary Senior Lecturer in Neurology
King's College Hospital & King's College School of Medicine
Depart of Neurology
King's College Hospital
Denmark Hill
London SE5 9RS
Phone: +44 (0)20 3299 8352
Fax:  +44 (0)20 3299 8341
E-mail: m.r.rose@kcl.ac.uk
- Michael R Rose Publications (PubMed)
- Alison J Carr Publications (PubMed)
- Kelly A Vincent Publications (PubMed)

Contact information

Mapi Research Trust
27 rue de la Villette
69003 Lyon
Phone: +33 (0)4 72 13 66 66

Conditions of use

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You are not authorized to modify, retype, translate, copy or otherwise duplicate the Questionnaire except with the further and prior written permission of Mapi Research Trust / the developers / copyright holders / distributors.


Original language(s)

  • English for the UK


The list of available translations is subject to constant changes and may not be exhaustive. It is provided for information only. Some recently produced translations may not be included in the list below yet. Please do check the status of available translations with Mapi Research Trust / the developers / copyright holders / distributors.

Also, the listed translations may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study.


Bulgarian for Bulgaria*
Danish for Denmark*
Dutch for the Netherlands*
English for the USA*
French for France*
German for Germany
Italian for Italy*
Japanese for Japan
Norwegian for Norway
Russian for Russia*
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Swedish for Sweden
Turkish for Turkey
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More information on translations

 Bibliographic reference of the English for the USA translation:

Rose M, Brooks V, Walburn J, Sanders D, Pandya S, Kissel J et al. Validation of the UK Individualised Neuromuscular Quality of Life measure for use in the USA. Neuromuscular Disorders 2006; 16 supplement: S176 (Abstract)

 Bibliographic reference of the Italian translation:

Sansone VA, Panzeri M, Montanari M, Apolone G, Gandossini S, Rose MR, Politano L, Solimene C, Siciliano G, Volpi L, Angelini C, Palmieri A, Toscano A, Musumeci O, Mongini T, Vercelli L, Massa R, Panico MB, Grandi M, Meola G. Italian validation of INQoL, a quality of life questionnaire for adults with muscle diseases. Eur J Neurol. 2010 Sep;17(9):1178-87

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