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Individualized Neuromuscular Quality of Life Questionnaire (INQoL)

Carr AJ; Rose MR; Vincent KA

Distributed by Mapi Research Trust

ProQolid

Distributed by Mapi Research Trust

Basic description

Developed in 2005

The author recommends the use of the version 2.0.

Authors

Carr AJ; Rose MR; Vincent KA

Copyright
INQoL © 2005 M R Rose & King’s College NHS-Trust, All rights reserved.
Objective
To assess health-related quality of life of patient suffering from neuromuscular diseases.
Therapeutic area
  • Nervous System Diseases
  • Musculoskeletal Diseases
Therapeutic indication

Muscular Diseases

Adult muscle diseases both acquired or congenital including congenital myopathies, limb girdle muscular dystrophies, facioscapulohumeral muscular dystrophy, dystrophic and non-dystrophic myotonias and inflammatory myopathies
Type of Clinical Outcome Assessment (COA)
  • pro PRO
Original language(s)
  • English for the UK
Bibliographic reference(s) of the original questionnaire

Vincent KA, Carr AJ, Walburn J, Scott DL, Rose MR. Construction and validation of a quality of life questionnaire for neuromuscular disease (INQoL). Neurology. 2007 Mar 27;68(13):1051-7 (PubMed Abstract)

Rose M, Brooks V, Walburn J, Sanders D, Pandya S, Kissel J et al. Validation of a quality of life measure for myasthenia gravis. Neuromuscular Disorders 2006; 16 supplement: S152

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Contact and conditions of use

Authors

Carr AJ; Rose MR; Vincent KA

Dr Michael Rose
Consultant and Honorary Senior Lecturer in Neurology
King's College Hospital & King's College School of Medicine
Depart of Neurology
King's College Hospital
Denmark Hill
London SE5 9RS
UK
Phone: +44 (0)20 3299 8352
Fax:  +44 (0)20 3299 8341
E-mail: m.r.rose@kcl.ac.uk
- Michael R Rose Publications (PubMed)
- Alison J Carr Publications (PubMed)
- Kelly A Vincent Publications (PubMed)

Contact information

Mapi Research Trust
PROVIDE™
27 rue de la Villette
69003 Lyon
France
Phone: +33 (0)4 72 13 66 66

Conditions of use

Students, physicians, clinical practice, not-funded academic users

You may access available translations of the questionnaire directly (see tutorial). Should you not see the Download button, please contact us.

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Review copy

Examination copies can only be used for the limited purpose of examining the suitability of the Questionnaire for subsequent research and/or clinical use, and cannot be used in research or in clinical practice or distributed to others.
You are not authorized to modify, retype, translate, copy or otherwise duplicate the Questionnaire except with the further and prior written permission of Mapi Research Trust / the developers / copyright holders / distributors.

Languages

Original language(s)

  • English for the UK

Translations

The listed translations may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study. This list is subject to constant changes, therefore please check the status of translations with Mapi Research Trust / the developers / copyright holders / distributors.

INQoL©

Bulgarian for Bulgaria*
Danish for Denmark*
Dutch for the Netherlands*
English for the USA*
French for France*
German for Germany
Italian for Italy*
Japanese for Japan
Spanish for Spain
Swedish for Sweden
Turkish for Turkey
* Performed by Mapi

The author has selected Mapi/ICON Language Services as exclusive linguistic validation company to ensure the production of harmonized and consistent language versions.

For additional information on available translations of this instrument, or for a project involving new languages, please submit a request (tutorials available on our FAQs).

Conditions to translate

Academic Translation

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Commercial Users

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More information on translations


 Bibliographic reference of the English for the USA translation:

Rose M, Brooks V, Walburn J, Sanders D, Pandya S, Kissel J et al. Validation of the UK Individualised Neuromuscular Quality of Life measure for use in the USA. Neuromuscular Disorders 2006; 16 supplement: S176 (Abstract)

 Bibliographic reference of the Italian translation:

Sansone VA, Panzeri M, Montanari M, Apolone G, Gandossini S, Rose MR, Politano L, Solimene C, Siciliano G, Volpi L, Angelini C, Palmieri A, Toscano A, Musumeci O, Mongini T, Vercelli L, Massa R, Panico MB, Grandi M, Meola G. Italian validation of INQoL, a quality of life questionnaire for adults with muscle diseases. Eur J Neurol. 2010 Sep;17(9):1178-87

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