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Pediatric Quality of Life Inventory™ (PedsQL™)

Varni James W

Distributed by Mapi Research Trust

Distributed by Mapi Research Trust

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Basic description

Please refer to "RELATED COA INSTRUMENTS" to access the available PedsQL modules.

UPCOMING MODULE - The PedsQL™ Epilepsy Module/ Pediatric Quality of Life Inventory™Epilepsy Module is currently under national testing phase. 

Authors

Varni James W

Copyright
Copyright © 1998 JW Varni, Ph.D. All rights reserved
Objective
To assess health-related quality of life in children in various diseases areas. Applicable for healthy school and community populations, as well as pediatric populations with acute and chronic health conditions
Therapeutic area
Depending on the module
Therapeutic indication
Depending on the module
Type of Clinical Outcome Assessment (COA)
  • ObsRO ObsRO
  • PRO PRO
Original language(s)
  • English for the USA
Bibliographic reference(s) of the original questionnaire

List of references for each PedsQL™ module


Contact and conditions of use

Authors

Varni James W

James W. Varni, Ph.D.
Professor Emeritus
Department of Pediatrics, College of Medicine
Department of Landscape Architecture and Urban Planning
College of Architecture
Texas A&M University
3137 TAMU
College Station, Texas 77843-3137
E-mail: jvarni@tamu.edu

James W Varni, PhD, Publications (PubMed)

Contact information

Mapi Research Trust
PROVIDE™
27 rue de la Villette
69003 Lyon
France
Telephone: +33 (0)4 72 13 65 75

Conditions of use

Non-Funded Academic Users

Please consult the online distribution tab below for our automated licensing and distribution process.

Other Users

  1. All requests have to be submitted through our online request management (Tutorials are available on our FAQs)
  2. In order to accelerate the process, you may attach the completed User Agreement (link below) to your online request
  3. Send the user agreement signed hard copy by regular mail to Mapi Research Trust, as we need it for our records
  4. Our PROVIDE team will get back to you with the needed information in a timely manner

Access fees

The license fee for using the PedsQL™ scales, modules and translations, varies according to the study type and financing, as follows:

 Not funded academic research

 Free

 Please consult the online distribution tab

 Funded academic research 

 Large non-commercial organization research and evaluation
 (e.g. States, Nations, Hospitals, Healthcare Systems)

 Commercial studies

 

 Cost per study

 Unlimited research, evaluation and clinical use on a yearly contract

 Annual license fee

 Patient Registry (non commercial or commercial)

 Annual fee

Conditions to translate

Please refer to the "Languages" tab

Conditions to implement in electronic applications

Exclusive licensor for e-versions of the PedsQL™: Mapi Research Trust

Academic and Commercial Users

  • Shall follow the “Conditions of use”  mentioned above
  • In addition, in case the electronic version of the PedsQL™ is developed by a third party (IT Company, e-PRO vendor…), User shall check with Mapi Research Trust that this third party has signed the necessary License Agreement with Mapi Research Trust before developing the electronic version of the Questionnaire.

Information Technology (IT) Companies (incl. ePRO vendors)

  • In case of a one-shot development and commercial use of an electronic version of the PedsQL™ by the IT Company, the IT Company shall:
    • Sign a “Specific-Study License Agreement with IT Company” with Mapi Research Trust
      • authorizing the electronic implementation of the PedsQL™ for the specific study only
      • shall not permit the IT Company to promote the electronic version of the PedsQL™ or its use for another study or another client
    • Pay a one-shot license fee per study to Mapi Research Trust: 500 Euros
  • In case of an IT Company who wishes to develop an electronic version of the PedsQL™ and would like to obtain a non-exclusive license to market and promote their devices / tablets / smartphones / e-applications using the PedsQL™, the IT Company shall:
    • Sign a “General License Agreement with IT Company” with Mapi Research Trust
      • authorizing the electronic implementation of the PedsQL™ on multiple devices for multiple studies and clients
      • permitting the IT Company to promote the electronic versions of the PedsQL™ by any marketing means (including, but not limited to, IT Company’s  promotional documents / websites / press release / communication during conferences / webinars)
    • Pay an annual administrative fee of 2,500 Euros to Mapi Research Trust
    • Pay an annual royalty fee of 3,500 Euros to Dr. James W. Varni

Author Website(s)

Additional information on the PedsQL™ website

Review copy

Examination copies can only be used for the limited purpose of examining the suitability of the Questionnaire for subsequent research and/or clinical use, and cannot be used in research or in clinical practice or distributed to others.
You are not authorized to modify, retype, translate, copy or otherwise duplicate the Questionnaire except with the further and prior written permission of Mapi Research Trust.

Online distribution

For Non-Funded Academic Studies

The following licensing process is restricted to academic users:

  • Who do not receive specific funding for their study
  • Who intend to use the questionnaire in individual clinical practice or research study

Should you not correspond to this category of users, please send us a request.

Note: This site aims at providing you with the original version and existing translations of the questionnaire. However some modules/versions may not be downloadable in the language you need.

Please first check our Translation Spreadsheet.

Login

To access this section, please complete a client account.

Languages

Original language(s)

  • English for the USA

Translations

The list of translations may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study. This list is subject to constant changes, therefore please check the status of translations with Mapi Research Trust / the developers / copyright holders / distributors.

The author has selected Mapi as exclusive linguistic validation company to ensure the production of harmonized and consistent language versions.

For additional information on available translations of this instrument, or for a project involving new languages, please submit a request (tutorials available on our FAQs).

Conditions to translate

Academic Translation

Please submit a request to sign a translation agreement and to obtain Linguistic Validation Guidelines. To submit a request, please consult our FAQs.

Commercial Users

Exclusive vendor for translation work for commercial users: Mapi

Author involved in the translation process

E-versions

List of existing e-versions

PedsQL™ Generic Core Scales Self report for Adolescents (Ages 13-18)

Tablet

Conditions to implement in electronic applications

Please refer to the "Contact and conditions of use" tab

Last update: February 2017
For additional information, please submit a request. More information on our FAQs.

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