Pediatric Quality of Life Inventory™ Duchenne Muscular Dystrophy Module (PedsQL™ Duchenne Muscular Dystrophy Module)

Varni JW


Last update: February 2018

Basic description

Conditions of use
The PedsQL™ Duchenne Muscular Dystrophy Module is a specific module of the PedsQL™

Existing versions: Acute and Standard versions, for Young Child (5-7 years of age), Child (8-12 years of age), Adolescent (13-18 years of age), Young Adult (18-25 years of age)


Varni JW

Copyright © 1998 JW Varni, Ph.D.
To measure Duchenne Muscular Dystrophy specific health-related quality of life
Therapeutic area
  • Nervous System Diseases
  • Musculoskeletal Diseases
  • Congenital, Hereditary, and Neonatal Diseases and Abnormalities
  • Rare disease (Orphanet definition)
Therapeutic indication

Muscular Dystrophy, Duchenne For more information on this rare disease, please consult the following link: Orphanet page

Type of Clinical Outcome Assessment (COA)
  • obsro ObsRO
  • pro PRO
Original language(s)
  • English for the USA
Bibliographic reference(s) of the original questionnaire

Uzark, K., King, E., Cripe, L., Spicer, R., Sage, J., Kinnett, K., Wong, B., Pratt, J., & Varni, J.W. (2012). Health-related quality of life in children and adolescents with Duchenne Muscular Dystrophy. Pediatrics, 130, e1559-1566.