Pediatric Quality of Life Inventory™ Neurofibromatosis Module (PedsQL™ Neurofibromatosis Module)

Varni James W

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Basic description

Conditions of use
The PedsQL™ Neurofibromatosis Module is a specific module of the PedsQL™

Existing versions: Standard version, for Adults (>26 years of age)


Varni James W

Copyright © 1998 JW Varni, Ph.D.
To measure Neurofibromatosis Type 1 specific health-related quality of life
Therapeutic area
  • Neoplasms
  • Nervous System Diseases
  • Congenital, Hereditary, and Neonatal Diseases and Abnormalities
Therapeutic indication


Neurofibromatosis Type 1
Type of Clinical Outcome Assessment (COA)
Original language(s)
  • English for the USA
Bibliographic reference(s) of the original questionnaire

Nutakki, K., Hingtgen, C.M., Monahan, P., Varni, J.W., & Swigonski, N.L. (2013). Development of the adult PedsQL™ Neurofibromatosis Type 1 Module: Initial feasibility, reliability and validity. Health and Quality of Life Outcomes, 11:21, 1-9.

Last update: May 2017
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