Conditions of use
The PedsQL™ Neurofibromatosis Module is a specific module of the PedsQL™
Existing versions: Acute version and Standard version, for Young Child (5-7 years of age), Child (8-12 years of age), Adolescent (13-18 years of age), Young Adult (18-25 years of age), and Adults (>26 years of age).
Neurofibromatoses For more information on this rare disease, please consult the following link: Orphanet page
Nutakki, K., Varni, J.W., & Swigonski, N.L. (2018). PedsQL Neurofibromatosis Type 1 Module for children, adolescents and young adults: Feasibility, reliability, and validity. Journal of Neuro-Oncology, 137, 337–347.
Nutakki, K., Varni, J.W., Steinbrenner, S., Draucker, C.B., & Swigonski, N.L. (2017). Development of the Pediatric Quality Of Life Inventory Neurofibromatosis Type 1 Module items for children, adolescents and young adults: Qualitative methods. Journal of Neuro-Oncology, 132, 135–143.