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Pediatric Quality of Life Inventory™ Neuromuscular Module (PedsQL™ Neuromuscular Module)

Varni James W

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Basic description

Conditions of use

The PedsQL™ Neuromuscular Module is a specific module of the PedsQL™

Existing versions: Acute version and Standard version, for Toddlers (2-4 years of age), Young Child (5-7 years of age), Child (8-12 years of age), Adolescent (13-18 years of age)

Authors

Varni James W

Copyright
Copyright © 1998 JW Varni, Ph.D. All rights reserved
Objective
To measure HRQOL dimensions specific to patients with neuromuscular disorders including Spinal Muscular Atrophy and Duchenne Muscular Dystrophy
Therapeutic area
  • Nervous System Diseases
  • Musculoskeletal Diseases
Therapeutic indication

Muscular Diseases

Neuromuscular diseases
Type of Clinical Outcome Assessment (COA)
  • ObsRO ObsRO
  • PRO PRO
Original language(s)
  • English for the USA
Bibliographic reference(s) of the original questionnaire

Iannaccone ST, Hynan LS, Morton A, Buchanan R, Limbers CA, Varni JW; AmSMART Group. The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module. Neuromuscul Disord. 2009 Dec;19(12):805-12 (Full Text Article)

Davis SE, Hynan LS, Limbers CA, Andersen CM, Greene MC, Varni JW, Iannaccone ST. The PedsQL™ in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales. J Clin Neuromuscul Dis. 2010 Mar;11(3):97-109 (PubMed Abstract)

Last update: February 2017
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