PedsQL™ – Officially distributed by Mapi Research Trust

Basic description

The PedsQL™ Neuromuscular Module is a specific module of the PedsQL™

Existing versions: Acute version and Standard version, for Toddlers (2-4 years of age), Young Child (5-7 years of age), Child (8-12 years of age), Adolescent (13-18 years of age), and Adults (>26 years of age).

Authors

Varni JW

Objective

To measure HRQOL dimensions specific to patients with neuromuscular disorders including Spinal Muscular Atrophy and Duchenne Muscular Dystrophy

Therapeutic area

Nervous System Diseases
Musculoskeletal Diseases

Therapeutic indication

Muscular Diseases

Neuromuscular diseases

Type of Clinical Outcome Assessment (COA)

ObsRO
PRO

Original language(s)

English for the USA

Bibliographic reference(s) of the original questionnaire

Iannaccone ST, Hynan LS, Morton A, Buchanan R, Limbers CA, Varni JW; AmSMART Group. The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module. Neuromuscul Disord. 2009 Dec;19(12):805-12 (Full Text Article)

Davis SE, Hynan LS, Limbers CA, Andersen CM, Greene MC, Varni JW, Iannaccone ST. The PedsQL™ in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales. J Clin Neuromuscul Dis. 2010 Mar;11(3):97-109 (PubMed Abstract)

Pediatric Quality of Life Inventory™ Neuromuscular Module (PedsQL™ Neuromuscular Module)

Basic description

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