Pediatric Quality of Life Inventory™ Rheumatology Module (PedsQL™ Rheumatology Module)

Varni James W

Basic description

The PedsQL™ Rheumatology Module is a specific module of the PedsQL™

Existing versions: Acute version and Standard version, for Toddlers (2-4 years of age), Young Child (5-7 years of age), Child (8-12 years of age), Adolescent (13-18 years of age)

Authors

Varni James W

Objective

To measure rheumatology specific health-related quality of life

Therapeutic area

Skin and Connective Tissue Diseases
Musculoskeletal Diseases

Therapeutic indication

Rheumatic Diseases

Type of Clinical Outcome Assessment (COA)

ObsRO
PRO

Original language(s)

English for the USA

Bibliographic reference(s) of the original questionnaire

Varni, J.W., Seid, M., Knight, T.S., Burwinkle, T.M., Brown, J., & Szer, I.S. (2002). The PedsQL™ in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ Generic Core Scales and Rheumatology Module. Arthritis and Rheumatism, 46, 714-725.

Joffe, N.E., Lynch-Jordan, A., Ting, T.V., Arnold, L.M., Hashkes, P.J., Lovell, D.J., Passo, M.H., Powers, S.W., Schikler, K.N., & Kashikar-Zuck, S. (in press). The utility of the PedsQL™ Rheumatology Module as an outcome measure in juvenile fibromyalgia. Arthritis Care & Research.

Seid, M., Huang, B., Niehaus, S., Brunner, H.I., & Lovell, D.J. (in press). Determinants of health-related quality of life in children newly diagnosed with juvenile idiopathic arthritis. Arthritis Care & Research.

Seid, M., Opipari, L., Huange, B., Brunner, H.I., & Lovell, D.J. (2009). Disease control and health-related quality of life in juvenile idiopathic arthritis. Arthritis and Rheumatism, 61, 393-399.

Brunner, H.I., Higgins, G.C., Wiers, K., Lapidus, S.K., Olson, J.C., Onel, K., Punaro, M., Ying, J., Klein-Gitelman, M.S., & Seid, M. (2009). Health-related quality of life and its relationship to patient disease course in childhood-onset systemic lupus erythematosus. Journal of Rheumatology, 36, 1536-1545.

Sawyer, M.G., Carbone, J.A., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2005). The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis: A one year prospective study. Quality of Life Research, 14, 1585-1598.

Sawyer, M.G., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2004). The relationship between health-related quality of life, pain, and coping strategies in juvenile idiopathic arthritis. Rheumatology, 43, 325-330.