Pediatric Quality of Life Inventory™ Sickle Cell Disease Module (PedsQL™ Sickle Cell Disease Module)

Varni JW


Last update: February 2017

Basic description

Conditions of use

The PedsQL™ Sickle Cell Disease Module is a specific module of the PedsQL™

Existing versions: Acute version and Standard version, for Toddlers (2-4 years of age), Young Child (5-7 years of age), Child (8-12 years of age), Adolescent (13-18 years of age), Young Adult (18-25 years of age) and Adults (>26 years of age)


Varni JW

Copyright © 1998 JW Varni, Ph.D. All rights reserved
To measure sickle cell disease specific health-related quality of life
Therapeutic area
  • Hemic and Lymphatic Diseases
  • Congenital, Hereditary, and Neonatal Diseases and Abnormalities
  • Rare disease (Orphanet definition)
Therapeutic indication

Anemia, Sickle Cell For more information on this rare disease, please consult the following link: Orphanet page

Type of Clinical Outcome Assessment (COA)
  • obsro ObsRO
  • pro PRO
Original language(s)
  • English for the USA
Bibliographic reference(s) of the original questionnaire

Panepinto JA, Torres S, Bendo CB, McCavit TL, Dinu B, Sherman-Bien S, Bemrich-Stolz C, Varni JW. PedsQL™ Sickle Cell Disease Module: Feasibility, reliability, and validity. Pediatr Blood Cancer. 2013 Aug;60(8):1338-44 (Full Text Article)

Panepinto JA, Torres S, Varni JW. Development of the PedsQL™ Sickle Cell Disease Module items: Qualitative methods. Qual Life Res. 2012 Mar;21(2):341-57 (Full Text Article)